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Image

kayla threaded a needle!

Posted by daydreamer Posted on: 10/03/08

kayla threaded a needle!

I think this news should be front page of the New York Times!

I threaded a needle! hurray! this is after months of shaking so bad i could hardly get food to my mouth with a spoon!

I'm having so many positive experiences like this that i'm too busy living them to write about them! I successfully negotiated chopsticks, I made a dinner almost completely by myself (someone drained the boiling noodles). I learned how to use the sewing machine i bought about a year ago but was too intimidated to use. (i still have to learn all it's nifty tricks but i got the basics going).

All this indicates to me that my brain is repairing: the increased physical coordination (not shaking and having control over my grip etc); metal concentration (a big part of making dinner for me is not burning down the house cuz i forgot what i was doing); learning new things (which involves memory, focus, logic and such) are all areas that were affected by the transplant preparation and immunosuppressants. I wonder if i can get a new brain scan to check for repair of those areas....

I'm so busy getting ready for Open Studio next weekend. i've posted some info on the "art" page on this site and you can see my works at my new website daydreamingarts.net but you should see these new images handing huge in my living room!

peace,
kayla


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  • Kayla, I don't know what you've overcome to achieve what you have (do you want to share?) -- but bravo!
    By chitowngirl on October 03, 2008 16:11

  • I guess i need a summary in a side bar so folks who drop by for the first time know i had a bone marrow transplant for MDS, a rare bone marrow cancer that, in my case, was caused by the chemo that saved my life and put my leukemia (also a bone marrow cancer) in remission back in 2003.
    By kayla on October 03, 2008 16:34

  • That's great, I'll vote for the front page of the NYT!
    By lauren on October 03, 2008 16:57

  • Hi Kayle. This is great to read. Must be an enormous relief for you. You know I have MDS as well and I am heading towards a bone marrow transplant at some stage. And my biggest worries are any negative changes in my personality and character, what they call a 'chemo brain'. Worse memory, not being able to do two things at a time, irritability and lack of humor. That's why it is so good to read directly from you how mental capacities come back now. Wonder what it feels like. A bit like a fog disappearing? Like waking up in the morning? Like opening a window or a door? Our mental capacities are a miracle anyway, I feel. Even if they are a bit weaker than average. I put a lot of effort into stopping to compare myself with others. So far with little success. But I think comparing oneself with others is a source of suffering. But that's another theme. I'm wishing you well, Kayle (from Berlin).
    By claus on October 04, 2008 17:06

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