Myeloplasitic Syndromes

This web page was created because of my diagnosis of MDS - myelodysplastic syndromes. This is a disease of the Bone Marrow. Some call it a cancer. Bone Marrow creates blood cells. In MDS the bone marrow is not working correctly - so i don't have enough blood cells.

My MDS is caused by the chemotherapy that saved my life when i had Leukemia. MDS is much slower moving than AML and there are treatments short of a Bone Marrow Transplant that may manage the symptoms. But only a BMT can cure it - or put it in remission. In my case a transplant is my only real option as i have a fairly bad prognosis in terms of survival without it and evolving to AML.

The purpose of this page is two fold:

1. to keep friends and family informed about my progress which is mainly through the news column &
2.  to connect with others whose lives are effected by MDS and share information about the disease.

To that end I am:

• posting and interpreting web research on the disease, and bone marrow transplants, tips on wellness and self care,  links to meditative videos - helping ourselves face this challenge calmly and with knowledge;
  
• encouraging others to post their stories and news in a dedicated column; and
  
• creating a space for caregivers to post updates, living well tips - whatever is useful for caregivers.

To post to these areas you need only contact me and i will send you info on easy posting through email.

It's imporatnt to me that people affected by MDS gain from my efforts so please spread the word.